STANDARDS OF CARE
Until recent years, bronchiectasis has been considered a rare and neglected condition. As such, the quality of care patients with bronchiectasis receive has historically been suboptimal – made worse by a lack of international guidelines on how to treat and manage bronchiectasis.
In 2017, EMBARC, in collaboration with the European Respiratory Society (ERS) and European Lung Foundation Patient Advisory Group, developed a set of international guidelines for the treatment of bronchiectasis. The guidelines contain evidence-based recommendations based on the available literature with the aim of improving the clinical management of bronchiectasis.
The guidelines made recommendations including, but not limited to:
Since their publication, the ERS Treatment Guidelines for Bronchiectasis have set an international standard for the quality of care individuals with bronchiectasis should receive.
The ‘ERS Guidelines for the Management of Adult Bronchiectasis’ is available to view online (see below):
More recently, further work from EMBARC has aimed to determine changes in the quality of care since the introduction of the ERS guidelines for bronchiectasis.
This work utilised data from >18,000 patients from 32 countries enrolled in the EMBARC registry before and after publication of the ERS guidelines and adherence to the recommendations issued in the guidelines were measured.
Quality of care for bronchiectasis patients in Europe has significantly improved since 2017.
The findings of this study have been presented in abstract form at the ERS Congress 2021.