The European Bronchiectasis Registry (EMBARC) registry is a multicentre, prospective, observational, non-interventional cohort study of CT-confirmed bronchiectasis patients.

The registry aims to:

• To increase our understanding of the demographics and burden of bronchiectasis across Europe.
• To enable the development of national bronchiectasis registries in countries that do not have a readily available bronchiectasis research infrastructure and promote international research collaborations.
• To capture the needs and experiences of patients living with bronchiectasis to inform bronchiectasis research and care.

Since it’s establishment in 2015, the EMBARC registry now holds comprehensive clinical data for >20,000 individuals with bronchiectasis from 300 research sites across 27 EU and non-EU countries, including baseline data and data obtained from annual follow-up.

The baseline demographics of the EMBARC registry have recently been reported (Chalmers et al., 2023).

Thus far, the EMBARC registry has resulted in numerous high-impact publications. 

Recruitment for the EMBARC Registry is open-ended and currently ongoing. If you are a research site interested in contributing to the registry, please contact us to register your interest.