{"id":4290,"date":"2024-04-24T16:33:28","date_gmt":"2024-04-24T15:33:28","guid":{"rendered":"https:\/\/learningspaces.dundee.ac.uk\/dundeeuniculture\/?p=4290"},"modified":"2025-09-15T10:46:30","modified_gmt":"2025-09-15T09:46:30","slug":"exchanges-inspiring-parkinsons-conversations","status":"publish","type":"post","link":"https:\/\/sites.dundee.ac.uk\/culture\/exchanges-inspiring-parkinsons-conversations\/","title":{"rendered":"Exchanges: Inspiring Parkinson\u2019s Conversations"},"content":{"rendered":"<p>This year&#8217;s winner of the <a href=\"https:\/\/www.dundee.ac.uk\/stories\/special-message-stephen-fry-closes-universitys-week-discovery\">Stephen Fry Public Engagement Project of the Year<\/a> award was the <a href=\"https:\/\/www.ppu.mrc.ac.uk\/\">MRC PPU<\/a> in the School of Life Sciences for their work on improving the experiences of those living with Parkinson&#8217;s. The project team introduce the project below.<\/p>\n<figure id=\"attachment_4295\" aria-describedby=\"caption-attachment-4295\" style=\"width: 1024px\" class=\"wp-caption aligncenter\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-4295 size-large\" src=\"http:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Stephen-Fry-Award_Exchanges_Team-photo-with-Exchanges-background-61fc3c460d8ed107-1024x1024.jpg\" alt=\"People with award in front of presentation\" width=\"1024\" height=\"1024\" srcset=\"https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Stephen-Fry-Award_Exchanges_Team-photo-with-Exchanges-background-61fc3c460d8ed107-1024x1024.jpg 1024w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Stephen-Fry-Award_Exchanges_Team-photo-with-Exchanges-background-61fc3c460d8ed107-300x300.jpg 300w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Stephen-Fry-Award_Exchanges_Team-photo-with-Exchanges-background-61fc3c460d8ed107-150x150.jpg 150w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Stephen-Fry-Award_Exchanges_Team-photo-with-Exchanges-background-61fc3c460d8ed107-768x768.jpg 768w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Stephen-Fry-Award_Exchanges_Team-photo-with-Exchanges-background-61fc3c460d8ed107-1536x1536.jpg 1536w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Stephen-Fry-Award_Exchanges_Team-photo-with-Exchanges-background-61fc3c460d8ed107.jpg 1920w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><figcaption id=\"caption-attachment-4295\" class=\"wp-caption-text\">Stephen Fry Award Exchanges Team<\/figcaption><\/figure>\n<p>Interactions between people with Parkinson\u2019s, carers and researchers are often limited to research talks or visits to laboratories. These interactions are hugely beneficial to all involved and improve the understanding of research developments, but the opportunity for deeper conversations \u2013 particularly around the complexities and ambiguities of the lived experience of Parkinson\u2019s and of the research process itself \u2013 can be limited in these settings.<\/p>\n<p>We identified a need from our previous &#8220;<a href=\"https:\/\/www.ppu.mrc.ac.uk\/misprints-sci-art-collaboration\">Misprints<\/a>&#8221; project to develop a creative resource that inspires deep, meaningful exchanges between Parkinson\u2019s researchers and people with lived experience of Parkinson\u2019s to further increase patient involvement in our research.<\/p>\n<p>MRC PPU researchers worked with external artist Daksha Patel to create art card drawings to represent our Parkinson\u2019s research and the Parkinson\u2019s symptoms observed by Prof Miratul Muqit in his Consultant Neurologist role.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-4293\" src=\"http:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Parkinsons-Exchanges_card-box-photo_0-7b6549936c23184a.jpg\" alt=\"Card game\" width=\"1000\" height=\"766\" srcset=\"https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Parkinsons-Exchanges_card-box-photo_0-7b6549936c23184a.jpg 1000w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Parkinsons-Exchanges_card-box-photo_0-7b6549936c23184a-300x230.jpg 300w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Parkinsons-Exchanges_card-box-photo_0-7b6549936c23184a-768x588.jpg 768w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/><\/p>\n<p>17 of our researchers and 9 local people with lived experience of Parkinson\u2019s (inc. carers) reviewed the art card drawings and co-created our interpretive art card activity, ensuring our final resource meets the needs of the Parkinson&#8217;s community:<\/p>\n<ul>\n<li>Discussed how to better represent their research or lived experience through the drawings<\/li>\n<li>Decided black and white drawings were preferred over colour to support personal interpretation of the art cards<\/li>\n<li>Input what new art cards were needed to include all participants\u2019 experiences of Parkinson\u2019s<\/li>\n<li>Tested different ways to use the art cards with question prompts such as \u201cWhat does Parkinson\u2019s mean to you?\u201d to support deeper conversations.<\/li>\n<\/ul>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-4294 size-large\" src=\"http:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Parkinsons-Exchanges_Group_0-ba94ad41810b0ea9-1024x1024.jpg\" alt=\"Group playing card game\" width=\"1024\" height=\"1024\" srcset=\"https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Parkinsons-Exchanges_Group_0-ba94ad41810b0ea9-1024x1024.jpg 1024w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Parkinsons-Exchanges_Group_0-ba94ad41810b0ea9-300x300.jpg 300w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Parkinsons-Exchanges_Group_0-ba94ad41810b0ea9-150x150.jpg 150w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Parkinsons-Exchanges_Group_0-ba94ad41810b0ea9-768x769.jpg 768w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Parkinsons-Exchanges_Group_0-ba94ad41810b0ea9-1534x1536.jpg 1534w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Parkinsons-Exchanges_Group_0-ba94ad41810b0ea9.jpg 1896w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/p>\n<p>To ensure accessibility, we also:<\/p>\n<ul>\n<li>Tested the colours, sizes and thickness of the cards and box to ensure they meet the needs of people with Parkinson\u2019s<\/li>\n<li>Set up a webpage (linked from a QR code on the card box) to enable the translation of the questions &amp; instructions cards into any language.<\/li>\n<\/ul>\n<p>This co-creation has enabled us to produce a final resource that meets the needs of all involved.<\/p>\n<p>We invited those with lived experience of Parkinson\u2019s and our researchers to use \u2018Exchanges\u2019 together in pairs (Sept 2022) and captured the resulting, powerful exchanges on film.<\/p>\n<p>Key outcomes<\/p>\n<ul>\n<li>Initial experiences of the art card resource being used between a person with lived experience of Parkinson\u2019s and a researcher generated striking levels of engagement, breaking down barriers and prompting profound conversations about Parkinson\u2019s and Parkinson\u2019s research.<\/li>\n<li>We discovered that the resource has an even greater\/wider impact than originally anticipated \u2013 it is successful at prompting discussions about the emotional and physical challenges of Parkinson\u2019s amongst people with lived experience of Parkinson\u2019s (people affected by Parkinson\u2019s and carers) without the presence of researchers too.<\/li>\n<li>Unexpectedly, the resource also supports deep conversations about Parkinson\u2019s in a group setting as well as in pairs, with participants advocating future use at conferences, in support groups, and in clinical settings.<\/li>\n<\/ul>\n<p>The project was accepted for poster presentation at the\u00a0<a href=\"https:\/\/wpc2023.org\/\">World Parkinson\u2019s Congress 2023\u00a0<\/a>in Barcelona.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-4291 size-full\" src=\"http:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Picture2-6b8af72b43a039c3.png\" alt=\"Tweet about project\" width=\"373\" height=\"340\" srcset=\"https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Picture2-6b8af72b43a039c3.png 373w, https:\/\/sites.dundee.ac.uk\/culture\/wp-content\/uploads\/sites\/263\/2024\/03\/Picture2-6b8af72b43a039c3-300x273.png 300w\" sizes=\"auto, (max-width: 373px) 100vw, 373px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>This year&#8217;s winner of the Stephen Fry Public Engagement Project of the Year award was the MRC PPU in the School of Life Sciences for their work on improving the experiences of those living with Parkinson&#8217;s. The project team introduce the project below. Interactions between people with Parkinson\u2019s, carers and researchers are often limited to [&hellip;]<\/p>\n","protected":false},"author":550,"featured_media":4294,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4,22,26],"tags":[],"class_list":["post-4290","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-art","category-science","category-well-together"],"blocksy_meta":[],"_links":{"self":[{"href":"https:\/\/sites.dundee.ac.uk\/culture\/wp-json\/wp\/v2\/posts\/4290","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sites.dundee.ac.uk\/culture\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sites.dundee.ac.uk\/culture\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sites.dundee.ac.uk\/culture\/wp-json\/wp\/v2\/users\/550"}],"replies":[{"embeddable":true,"href":"https:\/\/sites.dundee.ac.uk\/culture\/wp-json\/wp\/v2\/comments?post=4290"}],"version-history":[{"count":1,"href":"https:\/\/sites.dundee.ac.uk\/culture\/wp-json\/wp\/v2\/posts\/4290\/revisions"}],"predecessor-version":[{"id":6150,"href":"https:\/\/sites.dundee.ac.uk\/culture\/wp-json\/wp\/v2\/posts\/4290\/revisions\/6150"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/sites.dundee.ac.uk\/culture\/wp-json\/wp\/v2\/media\/4294"}],"wp:attachment":[{"href":"https:\/\/sites.dundee.ac.uk\/culture\/wp-json\/wp\/v2\/media?parent=4290"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sites.dundee.ac.uk\/culture\/wp-json\/wp\/v2\/categories?post=4290"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sites.dundee.ac.uk\/culture\/wp-json\/wp\/v2\/tags?post=4290"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}